Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts

Tuesday, October 22, 2024

Born on this day – Annette Funicello:


Annette Funicello


Actress, 

Singer

October 22, 1942 – April 8, 2013


Life doesn't have to be perfect to be wonderful.

- Annette Funicello.


Diagnosed with Multiple Sclerosis (MS) in 1987.

Credits:

A Dream Is a Wish Your Heart Makes: The Annette Funicello Story (1995); Full House (1991); Troop Beverly Hills (1989); Back to the Beach (1987); Growing Pains (1986); Lots of Luck (1985); The Love Boat (1978–1982); Fantasy Island (1979–1981); Frankie & Annette: The Second Time Around (1978); Love, American Style (1971); Head (1968); Hondo (1967); Thunder Alley (1967); Fireball 500 (1966); Dr. Goldfoot and the Bikini Machine (1965); How to Stuff a Wild Bikini (1965); Ski Party (1965); The Monkey's Uncle (1965); Beach Blanket Bingo (1965); Burke's Law (1963–1965); Pajama Party (1964); Bikini Beach (1964); Muscle Beach Party (1964); The Greatest Show on Earth (1964); The Misadventures of Merlin Jones (1964); Wagon Train (1963); Beach Party (1963); Escapade in Florence (1962); The Magical World of Disney (1959–1962); Toyland (1961); The Horsemasters (1961); Zorro (1959–1961); The Danny Thomas Show (1959); The Shaggy Dog (1959); Annette (1958); The New Adventures of Spin and Marty (1957); Further Adventures of Spin and Marty (1956).

Annette Funicello, on positivity:



Life doesn't have to be perfect to be wonderful.

- Annette Funicello.

October 22, 1942 - April 8, 2013.

Diagnosed with Multiple Sclerosis (MS) in 1987.

In support of Multiple Sclerosis (MS) research:

http://www.nationalmssociety.org

https://www.cando-ms.org/

http://msfocus.org

https://multiplesclerosisnewstoday.com

http://www.momentummagazineonline.com/

http://positivelivingwithms.com

https://www.msmindshift.com/

http://mymsaa.org

https://mssociety.ca

https://fumsnow.com/

http://www.msra.org.au/

https://www.annerowlingclinic.org/

Twitter hashtags:

#BikeMS #Brain #ChronicIllnessWarrior #CureMS #Demyelination #Disease #FightMS #FuckMS #FuckYouMS #FUMS #Lesion #MovingMountainsForMS #MS #MSawareness #MSAwarenessMonth #MSeducation #MSOnMyMind #MultipleSclerosis #MSstrong #MSSucks #MSwarrior #MuckFestMS #Myelin #mymsme #OverMS #LivingWellWithMS #ThisIsMS #vertigo #WalkMS #WalkTogether #WeAreILLmatic #WeAreStrongerThanMS #WorldMSDay

NEVER GIVE UP!



Friday, March 8, 2024

Honoring Sylvia Lawry on International Women’s Day:


Sylvia Lawry


On International Women’s Day,
I nominate Sylvia Lawry, who founded the National Multiple Sclerosis Society in 1947.



Sylvia Lawry, who single-handedly launched an international war on multiple sclerosis, founding both the National Multiple Sclerosis Society in the United States and the Multiple Sclerosis International Federation abroad, and who profoundly influenced research, disease management, and public policy concerning this complex neurological disease, died February 24, 2001, in New York City. Ms. Lawry was 85 and lived in Manhattan.

“The death of Sylvia Lawry was a tremendous loss to our organization and to the MS movement. Sylvia’s legacy will continue to inspire all of us who knew, or even knew of, her as we move closer each day to a world free of multiple sclerosis,” pledged Joyce Nelson, former President and CEO of the National MS Society.

“Sylvia Lawry was a private no-nonsense person to whom you couldn’t say ‘no,”‘ shares Weyman Johnson, former chairman, National MS Society, board of directors. “She devoted more than 50 years of her life seeking the means to end MS and was a hero to anyone touched by the challenges of the disease.”

Born in Brooklyn in 1915, one of four children of Jacob and Sophie Friedman, Sylvia Lawry was attending Hunter College with the aim of becoming a lawyer when her younger brother Bernard began experiencing visual and balance problems. They proved to be early symptoms of MS, an unpredictable, chronic, and often disabling disease of the central nervous system. For several years, the family pursued cures without success, ultimately leading Ms. Lawry to place a small classified notice in The New York Times in 1945: “Multiple Sclerosis. Will anyone recovered from it please communicate with patient.”

When the more than 50 replies she received were from individuals as desperate as she to find encouraging news about MS, Sylvia Lawry realized the need for an organized effort to stimulate and finance research into the cure, treatment, and cause of multiple sclerosis. The result was that on March 11, 1946, Ms. Lawry, a lone young woman, gathered 20 of the nation’s most prominent research scientists and founded what would become the National Multiple Sclerosis Society. From these humble beginnings, Ms. Lawry devoted the rest of her life to the pursuit of a world free of MS.

Initially incorporated in 1946 as the Association for Advancement of Research in Multiple Sclerosis with the sole purpose of sponsoring MS research, the organization was renamed as the National Multiple Sclerosis Society in 1947. This was in recognition of the fact that people affected by the disease, both patients and their families, desperately needed information and other service programs to enhance their lives while the cure was being sought. That year also, the first two local chapters of the Society were chartered in California and Connecticut.

Though Bernard’s health continued to weaken, and he ultimately succumbed to MS-related causes in 1973, Sylvia Lawry saw there were millions of others like her brother who needed help. With the assistance of Senator Charles Tobey of New Hampshire, whose daughter had MS, Ms. Lawry personally lobbied Congress and persuaded them to adopt legislation on August 15, 1950, establishing what is now the National Institute of Neurological Disorders and Stroke (NINDS). Up to this time, government interest in MS was minimal with research expenditures totaling approximately $14,000. Since then, government appropriations to the Institute have steadily increased, until today they have passed the $1.5 billion mark, approximately $110 million which directly impacts multiple sclerosis.

In the same era, chapters of the Society were established across the country to better serve people with MS and their families. Diverse education, counseling, self-help, equipment loan, advocacy, and referral programs were introduced with the help of dedicated volunteers and grassroots event-based fundraising.

In 1967, spurred by the fact that at that time almost one-third of the Society’s research funds were being awarded to investigators outside the U.S., Ms. Lawry founded the MSIF (Multiple Sclerosis International Federation). The federation helped coordinate fundraising and service efforts of young societies in Canada, Britain, France, Germany, and other European countries, modeled on the American original. The federation became a catalyst for the global MS movement in Latin America, Japan, Australia, New Zealand, Africa and Eastern Europe. Today there are 43 member societies around the world. The MSIF is headquartered in London.

Ms. Lawry served as Executive Director of the National MS Society until 1982 and maintained her role as Secretary of the Multiple Sclerosis International Federation until 1997, when she “retired.” She continued to be an officer of the National Board and was a full-time volunteer, devoting her efforts to the Society’s international programs and typically working a 12-hour day. “I’ll retire when MS retires,” she promised just a few months before respiratory illness ended her regular presence at the Society’s home office in Manhattan. She did continue to work from her home with colleagues worldwide and a book on her life and the history of the Society was just completed when she was hospitalized in February 2000.

Sylvia Lawry fiercely pursued her dream of a world free of MS for more than a half century. Though her vision of a cure for MS is not yet a reality, the National MS Society which she founded has devoted more than $600 million to MS research since 1946--playing a seminal part in developing understanding of the central nervous and immune systems, the two most complex systems in the human body.

Ms. Lawry’s commitment to research has also led the Society to become instrumental in the development of many of the FDA-approved medications that can reduce the number of acute MS attacks, protect the central nervous system from damage and delay the onset of more permanent disabilities.

The hard work of one young woman has resulted in an organization that today has a 50-state network of chapters expending nearly $126 million a year to serve over one million people and which devotes more than $46 million each year to support over 440 research projects internationally. The Society’s web site receives nearly two million visitors each month (www.nationalMSsociety.org); provides a toll-free telephone number that connects callers to their nearest local office (1.800.344.4867); and publishes an award-winning quarterly magazine Momentum, which has a readership of over one million. The Society also offers educational programs to health-care professionals and organizes state and national advocacy campaigns to address issues impacting people with disabilities.

Ms. Lawry was a widow and was survived by her two sons Steven and Frank Englander; her sister Lillian Wilson; and her two grandchildren Matthew and Marissa. The biography on Ms. Lawry’s life and its impact on the MS movement, Courage, was published in October 2003 by the firm Ivan R. Dee. Please direct contributions in her memory to the National MS Society or the MS International Federation, 733 Third Avenue, New York, NY 10017.

In support of Multiple Sclerosis research:


http://positivelivingwithms.com
http://www.nationalmssociety.org
http://msfocus.org
https://multiplesclerosisnewstoday.com
http://www.momentummagazineonline.com/
http://mymsaa.org
https://mssociety.ca
http://www.msra.org.au/

Twitter hashtags:

#BikeMS #brain #CureMS #demyelination #disease #FightMS #FuckMS #FuckYouMS #FUMS #lesion #MovingMountainsForMS #MS #MSawareness #MSAwarenessMonth #MSeducation #MultipleSclerosis #MSstrong #MSSucks #MSwarrior #MuckFestMS #myelin #mymsme #OMS #stumblingprincess #ThisIsMS #vertigo #WalkMS #WalkTogether #WeAreILLmatic #WeAreStrongerThanMS #WorldMSDay

NEVER GIVE UP!


Friday, March 1, 2024

March is MS Awareness Month:


Please make a donation.


In support of Multiple Sclerosis (MS) research:

http://www.nationalmssociety.org

http://www.mshope.com/

https://www.cando-ms.org/

http://msfocus.org

https://multiplesclerosisnewstoday.com

http://www.momentummagazineonline.com/

http://positivelivingwithms.com

https://www.msmindshift.com/

http://mymsaa.org

https://mssociety.ca

https://fumsnow.com/

http://www.msra.org.au/

https://www.annerowlingclinic.org/

Twitter hashtags:

#BikeMS #Brain #ChronicIllnessWarrior #CureMS #Demyelination #Disease #FightMS #FuckMS #FuckYouMS #FUMS #Lesion #MovingMountainsForMS #MS #MSawareness #MSAwarenessMonth #MSeducation #MSOnMyMind #MultipleSclerosis #MSHope #MSstrong #MSSucks #MSwarrior #MuckFestMS #Myelin #mymsme #OverMS #LivingWellWithMS #ThisIsMS #vertigo #WalkMS #WalkTogether #WeAreILLmatic #WeAreStrongerThanMS #WorldMSDay

NEVER GIVE UP!

Tuesday, September 6, 2022

In support of Multiple Sclerosis (MS) research:


In support of Multiple Sclerosis (MS) research:

http://www.nationalmssociety.org

http://www.mshope.com/

https://www.cando-ms.org/

http://msfocus.org

https://multiplesclerosisnewstoday.com

http://www.momentummagazineonline.com/

http://positivelivingwithms.com

https://www.msmindshift.com/

http://mymsaa.org

https://mssociety.ca

https://fumsnow.com/

http://www.msra.org.au/

https://www.annerowlingclinic.org/

Twitter hashtags:

#BikeMS #Brain #ChronicIllnessWarrior #CureMS #Demyelination #Disease #FightMS #FuckMS #FuckYouMS #FUMS #Lesion #MovingMountainsForMS #MS #MSawareness #MSAwarenessMonth #MSeducation #MSOnMyMind #MultipleSclerosis #MSHope #MSstrong #MSSucks #MSwarrior #MuckFestMS #Myelin #mymsme #OverMS #LivingWellWithMS #ThisIsMS #vertigo #WalkMS #WalkTogether #WeAreILLmatic #WeAreStrongerThanMS #WorldMSDay #EndMS

NEVER GIVE UP!

Saturday, December 25, 2021

A Multiple Sclerosis Night Before Christmas:

in Positive Thoughts


by Penelope Conway

 

Twas the night before Christmas, when all through my body,

Not a nerve was behaving, making me move rather shoddy.

My daily activities were chosen with care,

In hopes that each one could be done from a chair.

 

Each word that I spoke seemed to come out all wrong,

So much to be finished, I had to stay strong.

And John in the kitchen, and Missy making frappe,

Everyone busy working, no time for a nap.

 

When somewhere outside there arose such a clatter,

I peeked through the window, to see what was the matter.

I tried to move fast, to get to the door,

But I didn’t quite make it, and wound up on the floor.

 

As I lay on the rug, making sure nothing broke

Through tears I could see it, even gave it a poke.

Yes, what to my wondering eyes should appear,

But the cane that I had lost, earlier this year.

 

Then the front door cracked open, and before me he stood,

I immediately knew help had arrived which was good.

And more rapid than eagles, his phrases they came,

As he whistled and shouted, and called them by name.

 

“Now hang on, now slow down, now take more life pauses,

With stressful, and chaos, and tearful day causes.

To the end of the checklist, to the end of the hall,

Now dash away! Dash away! Dash away all!”

 

And then I could see, as I wiped away tears,

Why, his words and his wisdom had settled my fears.

As I sat on the floor, too weak to even move

He knelt down beside me, and said I have nothing to prove.

 

He looked a bit weary, as a glance we exchanged,

And he said that my focus is what needs to be changed.

What’s important is family and those who are nearby.

(On that last one he spoke with a twinkly eye.)

 

Your weakness…it’s real. Your limits…real too.

MS has this way of making even brilliant days blue.

He smiled as he spoke, and I knew he was right.

No more pity party moments or MS fist fights.

 

He spoke not a word more as he helped me to stand.

I found myself smiling as I reached for his hand.

I sat on the couch as he gave me a nod,

He helped me to see that my thinking was flawed.

 

Then he sprang to his sleigh, and to his team gave a whistle,

And away they all flew like the down of a thistle.

But I heard him exclaim, “You’re doing great, don’t forget,

To pause more and smile, you have nothing to fret.


In support of Multiple Sclerosis (MS) research:


https://positivewithms.com/


http://www.nationalmssociety.org


http://www.mshope.com/


https://www.cando-ms.org/


http://msfocus.org


https://multiplesclerosisnewstoday.com


http://www.momentummagazineonline.com/


https://www.msmindshift.com/


http://mymsaa.org


https://mssociety.ca


https://stumblingprincess.com


https://fumsnow.com/


http://www.msra.org.au/


https://www.annerowlingclinic.org/



Twitter hashtags:


#BikeMS #Brain #ChronicIllnessWarrior #CureMS #Demyelination #Disease #FightMS #FuckMS #FuckYouMS #FUMS #Lesion #MovingMountainsForMS #MS #MSawareness #MSAwarenessMonth #MSeducation #MSOnMyMind #MultipleSclerosis #MSHope #MSstrong #MSSucks #MSwarrior #MuckFestMS #Myelin #mymsme #OverMS #LivingWellWithMS #ThisIsMS #Vertigo #WalkMS #WalkTogether #WeAreILLmatic #WeAreStrongerThanMS #WorldMSDay #WorldMultipleSclerosisDay #EndMS


NEVER GIVE UP!