Allegorical Littera

Allegorical Littera

Thursday, December 14, 2017

The process of writing ...


Bloom - painting:



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Bloom - painting, card

Life changes with Multiple Sclerosis:




by Penelope Conway
December 14, 2017

Have you ever had this happen…a friend calls you up to invite you over for a get together. You would love to go but the challenge of a long drive, late hours, and lack of accessibility makes the decision for you. You politely decline but inside feel miserable because you realize how limiting your life has become.

There are times when having a disability is a great thing because you have an excuse to decline an invitation to a party you have no interest in going to or a reason to not help a friend move the furniture in their house. But it’s sad when you can’t join in on something you really want to be a part of.

Life changes with MS…which sucks. You find yourself making decisions based on how difficult it is to climb the stairs rather than on whether you have to pick up a gift and a platter of food on the way. The depression that weights on you can be hard to deal with and even overwhelming at times. It’s not an easy thing to come to terms with.

At this time of year it can become extra hard because you see people going out enjoying the holidays, spending time together shopping, having late night dinner parties…doing all the able-bodied things people do that you are no longer capable of doing. It seems the winter months have this way of ushering in a sadness along with the cold and the snow.

Multiple Sclerosis depression is a real thing. It has this way of sneaking up on you and before you know it you find yourself sinking in a sea of despair. I’ve been there myself. It can become overwhelming if you allow your thoughts to rule the day and slip into the “why me” places.

I’ve heard people say that I have no reason to be sad because someone else may have it worse than me, but that would be the same as saying I can’t be happy because someone else might have it better. That’s just not a valid argument.

I know it’s hard, but try and find something good in the chaos. Take up a new hobby. Learn to paint, write or play an instrument. Do volunteer work. Adopt a pet that needs a good home. There is still a lot of living to be done even with MS hanging around.

What’s truly stopping me from enjoying my life? Me. I am the only one hindering myself. With that realization I have decided that whatever comes my way, if I can’t change what is happening in my life, I can let go and change me.

 


In support of Multiple Sclerosis research:










Twitter hashtags:

#MS
#MultipleSclerosis
#fums           
#mseducation
#msawareness
#curems
#mymsme
#MSwarrior
#MSstrong
#fightms
#MSAwarenessMonth
#stumblingprincess
#OMS
#WalkMS
#WalkTogether
#WeAreStrongerThanMS
#mssucks
#movingmountainsforms
#lesion
#myelin
#demyelination
#disease
#brain
#vertigo
#cure

NEVER GIVE UP!


Wednesday, December 13, 2017

Be quiet ... and write:


I woke up exhausted and moving slow:




by Penelope Conway
December 12, 2017

Is it time for bed yet? That was my first thought as I woke up this morning. I glanced at the clock and it was proudly displaying 6:30 AM. That’s way too far away from the sun going down and me climbing back into bed. I yawned, tried to stretch and yawned some more but only seconds passed. Now the clock says it’s 6:31 AM. At least it’s one minute closer. Maybe I can just lie here another 720 minutes.

Some days I wake up already knowing how my body is going to behave, and I can already tell that mine is going to be moving slow…turtle slow. I have yet to wake up feeling refreshed and chipper, even after my morning cup of coffee. As a matter of fact, I haven’t felt rested in years. I’m not even sure what that feels like anymore.

I used to hate the kind of people who wake up immediately bouncing around with gusto as soon as they open their eyes. Right about now I wish I had a teeny tiny bit of their morning pep and bounce.

So, how do you function when your body won’t function? How do you pull together enough energy to get up and get yourself dressed? What do you do when you have to drag your body through the day as it rebels at any and every form of movement? How do you win the fight with your own body?

People don’t quite understand that kind of MS dilemma and how difficult those questions are to answer. They see our bodies and think that nothing is wrong with us. If only they could take a look at the damage hidden beneath our skin and tucked away in our Central Nervous System. It would tell a completely different story because that’s where the chaos lives.

When your legs are having trouble placing one foot in front of the other to take you where you need to go or your hands contain zero strength as everything you hold comes crashing to the floor, don’t let your inability to do something keep you from living your day.

There’s more to living than walking or holding onto things. Sure MS gets in the way of just about everything we do, but don’t let it steal the one thing that will help you through your day…hope.

Hope for a better today than you had yesterday. Hope for more strength when you are at your weakest. Hope for a day of less pain and smaller struggles. Hope for the tears to be dried up and smiles to take their place. Hope for real, genuine friends to become a part of your journey. Hope for hope!

Be kind to yourself today. Don’t push too hard, too fast. Know your limits and say “no” to people demanding more. No is not a dirty word. It’s a word that will save you from many stressful and unnecessary situations. You are in charge of your day. You are the boss, the head honcho, the big cheese of your body. You get to set the pace, no matter how slow it may seem to others.

Remember, being slow isn’t a bad thing. Don’t forget about the tortoise and the hare. Both set off to win a race which the hare should have had no problems in winning, but the tortoise crossed the finish line first. Be the tortoise today. Use your smarts over your bodies’ abilities and cross the finish line at the end of the day a winner.

 


In support of Multiple Sclerosis research:










Twitter hashtags:

#MS
#MultipleSclerosis
#fums           
#mseducation
#msawareness
#curems
#mymsme
#MSwarrior
#MSstrong
#fightms
#MSAwarenessMonth
#stumblingprincess
#OMS
#WalkMS
#WalkTogether
#WeAreStrongerThanMS
#mssucks
#movingmountainsforms
#lesion
#myelin
#demyelination
#disease
#brain
#vertigo
#cure

NEVER GIVE UP!